These are some of the important issue need to be covered when handling an issue of genetic testing.
- informed, voluntary decision
- only available to subjects who have reached the age of maturity
- subjects must not be discriminated in any way after the results known
- not part of routine blood investigation without permission, including in symptomatic subjects
- ownership of the results remain with the subject who requested the results
- consent form
- multidisciplinary team involve, including genetic counselor
- select companion
- results should be presented verbally and in written form
- prenatal testing is possible
To know more about Huntington's Disease in particular, a useful site will be at Huntington's Disease Association UK.
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